All symptoms looks like RA, but is it?

By bertalynn Latest Activity January 9, 2013 at 9:34 pm Views 4,124 Replies 8

bertalynn

My health has been on a roller coaster the past few years. My PCP thinks I have RA due to all the symptoms I have, but the lab test for it keeps coming back negative. I have heard that the blood test can be negative
And you can still have RA. My joints hurt all the time, especially my hands
And feet. I had seen a Rheumatologist that squeezed
My joints in my hands and said " nope you don't have RA, there isn't anything I can do for you!" And still I have no answers. Can someone help me with this? I'm so confused!

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Replies (8 replies)

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  • Linn1431
    Linn1431 November 20 at 8:44 pm   

    I am having the same problem I have all the symptoms and I struggle everyday
    I have had the the blood test in fact I have had a few and still the say no but the symptoms are there I have other problems as well I have fibroimyalgia and I also have lupus so I understand your frustration you know what you feel but they don't and unfortunately if it's not there then it must not be so just hang in there I do and keep being persistent with your pcp and just follow the exercise and diet and do what helps you and eventually you will get the right treatment and help like I said I have been struggling for years and with my other problems and negative test they just don't see and as frustrating as it is don't stop telling them

  • casswill01
    casswill01 February 10, 2015 at 11:59 am   

    Hi my name is Cassandra. For 3 months in 1997 I suffered with weight loss and just fatigue also joint pain but the RA test kept coming back negative. My doctor at that time was frustrated He knew something was wrong but could not find anything. Get another opinion go to Rheumatologist and have them check for Lupus (SLE). When I was taking to the hospital because my joint stop working then after a series of test ran. A Rheumatoid specialist had taken my case and discovered that it was in fact LUPUS but while they were running test. It would not reveal itself. But finally this doctor stuck with it and now the disease is being maintain and my help is improving. Thank God. Hang in there we are all praying for you and with you.

  • AlejandroDubose
    AlejandroDubose February 9, 2015 at 6:40 am   

    RA (Rheumatoid arthritis) is considered as long term chronic disease. Its symptoms can come and go, as each individual facing this problem is affected differently. Some have long time of remission, since their RA remains inactive while other have constant symptoms for months. When your doctor suspects the symptoms of arthritis they might prescribe you first for blood test. Your blood will go under various examination held by the help of diagnostic tools that you can see at http://www.ilexmedical.com/products.php?id=107 which determine the type of arthritis you have. In some cases the doctors might include C-reactive protein, erythrocyte sedimentation rate and joint X-rays tests as well. In RA joint pain in body parts like the fingers, wrists, knees, ankles and feet are very common. Immediately consult with doctor to have good treatment for it.

  • Lana
    LanaPA January 11, 2013 at 9:18 am   

    My bloodwork for RA always came back negative. My rheumatologist looks for inflammation markers in my bloodwork and does a pain assessment exam of my joints. You may or may not have RA but you have something going on that is causing you a whole lot of pain. My suggestion is to you is to get a second opinion. If you have insurance where a referral is not necessary, I would find a rheumatologist within your insurance’s network and make an appointment and see if you can find someone to see you right away. If your insurance requires you to maintain a doctor, call your insurance and see if they can change your doctor to someone who treats arthritis. You need to find answers and this may be hard to believe but you know what is best for you than any doctor. Make your appointment for a second opinion and start journaling your symptoms and their triggers. Are you more affected due to weather changes such as a temp drop or jump? How about food and stress? Is lack of sleep a symptom or a trigger? Also, keep track of all the testing done and what doctors you have seen. A prepared patient usually has better results than one who isn’t. I hope that the answers come soon. Good luck!

  • SuSewSew
    SuSewSew January 21, 2013 at 1:25 pm   

    Hey, Lana! It took the ortho 2 visits before he said, "RA". He referred me to to an RA dr who treated me with meds, physio, etc and did blood tests four years (sed-rate) before a positive came back. We actually laughed in the office!

  • bertalynn
    bertalynn January 11, 2013 at 9:53 pm   

    I'm now on my third Rheumatologist. My ANA has been the same (1:645) for a year, but no one has wanted to dig in and really see what's wrong. I get the squeeze test on joints and they say "no swelling, so no RA. When the squeeze it frickin painful! I guess that's not a sign? I dunno, I'm scared that this one is going to push me away as well. I use to never be scared to talk to specialists now, since I have been treated so poorly by them. All I know is I'm at wits end and it's really taking its toll on me mentally.

    Roberta

  • Jazminsw
    Jazminsw January 30, 2014 at 3:52 am   

    Have you been tested for Lupus SLE? That could be what it is. It is amazingly similar to RA. I actually have Lupus and thought this pain was from that, but my RA test came back horribly high for RA so they cross paths once in awhile. Ask the doctor about Lupus and see what they say, if you haven't already done so.

  • SuSewSew
    SuSewSew January 26, 2013 at 2:57 am   

    Have they checked for Fybromyalgia? My RA dr told me I had it 10 years ago. I thought he was talking about someone else! Luckily it only is problematic if I am over-tired, over-extended, overdue for Remicade…sensing a theme? Yup…it ain't over till the Fibro sings. RA dr suggested I take a Benadryl at night to help with sleep and the itching. Works like a charm. I've gone wheat-free and that seems to be helping as well. I am more clear-headed and sleep better. Good luck!

    Suzanne