Sooo frustrated – Celiac, RA, Food Allergy, something….
By April 26, 2013 at 4:01 pm 1,282 3 1
In April 2012 I ended up in hospital with vomiting and diarrhea. I had been sick for a week by the time I went to the doctor who sent me to hospital. He was concerned because of the RA meds I could have Legionnaires Disease, which was ridiculous because I had not had any water that wasn’t out of the fridge filter and I had not been in any bodies of water (fresh or salt) and I live in Florida. My Pulmonologist who I see for Asthma was the on-sight pulmonologist that day. They checked everything out, did chest x-ray, blood tests, gave me 5 rounds of 3 different antibiotics and then sent me home after 3 days. They just put it down to Gastroenteritis. Towards the end of the stay the diarrhea had mostly subsided and it was just vomiting a couple times a day. Gradually over time the vomiting spaced out over days. The best I did was going 3 weeks without vomiting about two months ago. The other thing that started was I was no longer able to eat as much food as I used to. Then over the past few weeks I have been starting to vomit or wretch every day again. I started trying to change my diet, taking out gluten, then I tried having just a salad making sure the dressing was gluten free (it was specifically marked on the menu) and had nothing else that could cause a problem (even talked to the chef). I thought I was eating the salad fine, couldn’t only eat half and then started to get an upset stomach. I threw up the whole thing. I usually on partially lose my lunch (excuse the pun), but this time it was totally and followed by dry heaves.
Several people in my family have been diagnosed with Celiac Disease. The most recent was my own brother. I had already cut out most gluten when he found out. I was given one blood test about 8 years ago when the first relative (who only shared one grandparent) got diagnosed and I was told it was negative. My sister’s doctor wouldn’t even test her because she was overweight. After my second relative got diagnosed recently I started out
I was also tested because I have had all kinds of GI symptoms since I was 16. They decided to remove my gallbladder even though all tests came back negative based on symptoms. The gallbladder was badly diseased with no stones. They determined that I also had GERD and a Hiatal Hernia. Because I was overweight for most of the time I have had the problems we assumed it couldn’t be malnutrition linked to Celiac because my cousin was wasting away when she was diagnosed. Doing research more recently I found out that it can cause you to gain weight. The things that were red flags that I came across lately that can be linked to Celiacs are, diseased gallbladder, unexplained iron anemia (got that a few years ago), IBS symptoms, auto-immune diseases (I was diagnosed with RA in 2011). So with cutting out the gluten I found that MOST of the IBS type symptoms that I have had for 20 years stopped.
Another thing I found in reading was a recent study studying Hep B vaccines not staying in Celiac sufferers system. I had a severe allergic reaction to a Hep B vaccine when I was 18. In reading more I found out that Hep B vaccine was made involving yeast (I don’t understand the specifics, I’m not a immunologist). Reading further I found out that some people’s bodies react to yeast mistaking it for gluten. So either way, I was thinking I should probably try cutting out yeast. In reading found out just how much stuff has yeast (ARGH!!!). If yeast is the problem it would explain why I reacted so bad to that salad.
I keep finding out stuff I thought was fine have gluten like granola bars, I didn’t realized oats have gluten. I got frustrated the other day with getting sick in the morning so decided to hell with it and had deep fried mushrooms with ranch sauce. I was sick yesterday and now today EVERYTHING I eat is causing my GI pain/problems. Since changing my diet I am also breaking out in hives and itchy rashes. Usually when this happens I look back and find out something had flavoring added to it. So much of the crap I read online is contradicting, too much of yeast information is about Candida not allergy. The whole thing about yeast is ridiculous. It’s like the only things that are safe from yeast are meats and even some people say what the animal is fed can be a problem.
Some of what I read says the Celiac, RA, etc can all be linked. I did find when I
I am at my wits end and it has only been about a few weeks of trying to cut out the yeast. I started cutting back on gluten in December. I’m losing weight like crazy now that I have cut so much out. I don’t know if it because I can’t no longer eat all those carbs, that I’m no longer eating stuff that is potentially causing me to be malnourished, or just because I don’t know what to eat and am not eating enough now.
If anyone knows of GOOD and reliable resources I would love to be pointed in their direction.
I am posting this on both the RA community and the Celiac community to give me a better chance of finding help.